ABOUT
OUR STORY
Connecting hearts, celebrating abilities.
Since 1986, the Durham Down Syndrome Association (DDSA) has been more than a support group — we’re a community. What began with a few dedicated families in Durham Region has grown into a thriving network where people with Down syndrome and their loved ones are seen, celebrated, and supported.
From early playgroups to social outings, educational resources to community partnerships, DDSA was created to meet a simple but powerful need: connection. Families wanted a place where questions could be asked freely, where experiences could be shared honestly, and where people with Down syndrome could belong — not just be included, but valued in every sense.
Over the years, our community has grown not just in numbers, but in heart — bringing together neighbours, schools, healthcare professionals, caregivers, and supporters who believe that every person deserves the chance to thrive. Today, we stand proud as a resource, an advocate, and a home for everyone whose lives intersect with Down syndrome in Durham Region.
WHAT WE DO
Community & Connection
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Organize regular social events for families, adults, teens, and siblings
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Facilitate playgroups, meetups, and peer support opportunities
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Create safe, welcoming spaces for friendships to grow
Information & Resources
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Provide up-to-date, evidence-based resources about Down syndrome
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Offer guidance on early years development, education, health, and transitions
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Share tools and referrals to local services, specialists, and community partners
Education & Awareness
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Offer workshops, training sessions, and presentations for families and professionals
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Promote understanding about Down syndrome in schools, workplaces, and community spaces
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Advocate for respectful language, inclusive practices, and equal opportunities
Support Across Life Stages
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Help families navigate key milestones - from early intervention to school transitions
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Support adults with Down syndrome in accessing employment, recreation, and community participation
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Equip siblings, caregivers, and allies with resources, encouragement, and connection
Community Leadership & Advocacy
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Amplify the voices of people with Down syndrome
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Work with local partners to increase inclusion, accessibility, and belonging
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Represent Durham Region in provincial and national conversations
BOARD MEMBERS
Our board members kindly volunteer their time to organize, host, and ensure our programs and events go off without a hitch. They dedicate this time to our community because they believe in inclusion, accessibility, and belonging for all.
Michelle Smith
President
I’m a proud mom of 3 and my middle daughter Desiree, who has Down syndrome, continues to be my greatest teacher. I joined the DDSA to build stronger community connections and create spaces where every family feels seen and supported. Serving on the Board since 2018 has deepened my commitment to belonging and advocacy.
Vice-President
Rebecca Brown
My name is Rebecca and we learned Madison had Down syndrome at birth, and the only support we received from the social worker at the hospital was a print out of the front page of the DDSA website. To begin advocating for our family and Madison as we started this unexpected journey, I joined the DDSA board in the earlier years, and after a few years off, am pleased to return and serve the DDSA again.
Carrie Colligan
Treasurer
Hi I'm Carrie! I am a mom of three, and Mikey, my middle child, has Down syndrome. I am a teacher by profession, currently a Program Support Teacher. Thankfully I found the DDSA after Mikey was born and have been on the Board of Directors for just over 10 years. I hope to make our DS community a better place for all.
Director, Family & Community Support
Irene Fawcett
Irene is a proud mother of three children. Her oldest, Ariana (9), has Down syndrome. Receiving a birth diagnosis as a first-time mom shaped her in powerful ways and brought deep purpose to her life. She joined DDSA to give back and be a compassionate, supportive presence for families beginning their journey.
Sarah
MacKenzie-Smith
Secretary
Sarah is a mom of two, including one incredible child rocking an extra chromosome. After an unexpected Down syndrome diagnosis, she chose to rewrite the narrative—turning fear into hope and sharing encouragement and joy. She now serves her third term on the DDSA Board.
Hillary Myhal
Director, Resource Support
I’m Hillary, a teacher and mom of three. My oldest, Charlotte, has Down syndrome. After receiving a prenatal diagnosis and feeling afraid, the DDSA supported us and helped us see the beauty in the journey ahead. That love is what later inspired me to join the board myself.
